CFS Diary

A Bit Of Background

I was diagnosed with Chronic Fatigue Syndrome in the early 90’s after a triple bout of Glandular Fever. I was told that there would be days when I would feel exhausted and to take it easy. I kept having the occasional bout until about 3 years ago when it seemed to be just hanging around but it really kicked in after I broke me leg 2 years ago. Now I’m doing well if I get 3days in a row without feeling exhausted.

Around Christmas 2014 I went to see Dr Richard Schloffel (scroll down to see his video). He confirmed the CFS as well as leaky gut and also coeliac disease. He hopes that with his help I will be able to manage it. He has me on supplements and the FODMAP Diet

Ward.

09 May 2015

Over the last few weeks I have been attending sessions with a yoga therapist. This was suggested as something to explore to help manage my Chronic Fatigue Syndrome.

I’ve been told that Yoga Therapy has only recently been introduced to the country & there are not a lot of practitioners around.

What my therapist does is breath meditation with movement. The movements are very gentle & to me are similar to Pilate’s movements. It’s early days but she has talked about one thing & that is my sleep.

I have had crap sleep for decades – difficulty getting to sleep and greatly interrupted sleep. The specialist has been trying to get me into a sleep habit by taking 1 blue tablet & one other tablet, but I still wake up really badly. My Yoga Therapist suggested I go to bed early.

She thinks it’s important to get to bed before 9pm which is spleen time

I have tried it the last 3 nights I it seems to be working. I even went for a walk this morning at 7am. That’s the first time in months I’ve been able to get up at 7am

Also I have dropped my stress by dropping about 50% of my Aqua training.

This will mean less time driving around in peak hour traffic and less time in a Chlorine environment.

Maybe things are starting to work.

Diet, supplements, sleep routine & something to focus my mind on which is why I’m starting to paint & photograph again.

Ward.

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